Expectations exceeded for Connor

To help send Connor to Boston, Barriere gathered together and held a fundraiser dinner and pie auction on Oct. 12.

Barriere’s Connor McKirdy enjoys looking at his hometown newspaper

Barriere’s Connor McKirdy enjoys looking at his hometown newspaper

Young Connor McKirdy suffers from a variety of chromosome disorders: Chromosome 15q Duplication Syndrome (Dup15q), 17q and 3q23 Chromosome Disorder.  Some of the main characteristics of all children affected by Dup15q are seizures (to which Connor has had up to 18 episodes a day), cognitive delays (mental retardation and behavior problems), fine motor delays, speech and language delays, sensory process disorders and anxiety disorders.

There is very little known about 3q23 Chromosome Syndrome and the genes that affect it. Connor, in fact, is so far the only one in the world documented with this disorder, and at present there is no specific treatment that can undo the genetic pattern seen in people affected by these syndromes. However, there is help for Connor, who recently had the opportunity to visit neurosurgeon, Dr. Ron Thibert, in Boston, Massachusetts, who has provided this youngster with a management plan to help control the symptoms of his disorder.

To help send Connor to Boston, Barriere gathered together and held a fundraiser dinner and pie auction on Oct. 12.  The funds raised were exceptional, and provided a great assist with the trip expenses, as well as some of the medical costs.

Connor’s mom, Therese McKirdy, stopped by the Star/Journal on Monday to excitedly report that she and Connor are now back home, with “Expectations exceeded!”

“The journey was filled with many wonderful new sights and sounds, but none as great as the hours spent at the clinic,” reported Therese, “Dr. Ron Thibert was as knowledgeable, kind and informative as we had  hoped.  His colleague, Dr. Morgan, in neurophysiology,  was equally helpful in her assessments and diagnosis with Connor’s current and known future physiological issues associated with Dup15.  We came home with a list of critical tests that need to be done to manage his heart and kidney dysfunction, epileptic management, dietary requirements, and most importantly peace of mind that we finally have an incredible team behind our sweet boy.  We are blessed, and we thank you again Barriere.”

Just Posted

File photo
BREAKING: Fuel tanker fire closes Highway 24

Emergency crews are on scene on Highway 24 at Cartwright Road.

Residents line up outside the Vernon Recreation Complex for their COVID-19 vaccine Saturday, June 5. (Jennifer Smith - Morning Star)
No appointments necessary for first dose COVID-19 vaccine: Interior Health

People can just show up at clinics, register on the spot and get the shot

(TNRD Library)
Let the mystery of the Summer Reading Club begin

Are you ready to ‘Crack the Case’ at the Barriere Library?

(Metro Creative photo)
Gardeners of all ages invited to enter 2021 NT Fall Fair contests

The North Thompson Fall Fair Drive Thru scheduled for Saturday, Sept. 4,… Continue reading

Milsom Lodge was built in the East Barriere Valley when the Milsom brothers purchased two parcels of land in 1911, DL 2323 and DL2324. (Milsom’s photo)
The Milsom Lodge: The mansion, the ballroom, the history

“At the turn of the century, when so many families were leaving… Continue reading

Canadian Prime Minister Justin Trudeau participates in a plenary session at the G7 Summit in Carbis Bay, England on Friday June 11, 2021. THE CANADIAN PRESS/Adrian Wyld
Canada donating 13M surplus COVID-19 vaccine doses to poor countries

Trudeau says the government will pay for 87 million shots to be distributed to poor countries

Indigenous Services Minister Marc Miller is seen during a news conference, Wednesday May 19, 2021 in Ottawa. THE CANADIAN PRESS/Adrian Wyld
Indigenous child-welfare battle heads to court despite calls for Ottawa to drop cases

Feds are poised to argue against two Canadian Human Rights Tribunal rulings

The Great Ogopogo Bathtub Race has been held in Summerland as a fundraising event. Do you know which Canadian city introduced this sport? (Black Press file photo)
QUIZ: A summer’s day at the water

How much do you know about boats, lakes and water?

Two-year-old Ivy McLeod laughs while playing with Lucky the puppy outside their Chilliwack home on Thursday, June 10, 2021. (Jenna Hauck/ Chilliwack Progress)
VIDEO: B.C. family finds ‘perfect’ puppy with limb difference for 2-year-old Ivy

Ivy has special bond with Lucky the puppy who was also born with limb difference

A million-dollar ticket was sold to an individual in Vernon from the Lotto Max draw Friday, June 11, 2021. (Photo courtesy of BCLC)
Lottery ticket worth $1 million sold in Vernon

One lucky individual holds one of 20 tickets worth $1 million from Friday’s Lotto Max draw

“65 years, I’ve carried the stories in my mind and live it every day,” says Jack Kruger. (Athena Bonneau)
‘Maybe this time they will listen’: Survivor shares stories from B.C. residential school

Jack Kruger, living in Syilx territory, wasn’t surprised by news of 215 children’s remains found on the grounds of the former Kamloops Indian Residential School

A logging truck carries its load down the Elaho Valley near in Squamish, B.C. in this file photo. THE CANADIAN PRESS/Chuck Stoody
Squamish Nation calls for old-growth logging moratorium in its territory

The nation says 44% of old-growth forests in its 6,900-square kilometre territory are protected while the rest remain at risk

Flowers and cards are left at a makeshift memorial at a monument outside the former Kamloops Indian Residential School to honour the 215 children whose remains are believed to have been discovered buried near the city in Kamloops, B.C., on Monday, May 31, 2021. THE CANADIAN PRESS/Darryl Dyck
‘Pick a Sunday:’ Indigenous leaders ask Catholics to stay home, push for apology

Indigenous leaders are calling on Catholics to stand in solidarity with residential school survivors by not attending church services

Most Read