When Barriere helped Connor McKirdy, it started a national movement to help others

letter to the editor from Therese McKirdy, CEO, Clinics & International Chair - idic15



To the editor;

We are fast approaching a very important anniversary. One year ago, this wonderful community of Barriere came together and provided our family and our little Mr. Connor, with a second chance.

This was a trip to Boston to see the only specialist in the world familiar with treating one of his rare chromosome conditions, Idic15 (Chromosome 15q 11-13 Duplication Syndrome)

I would like to now update with how things have progressed since that trip.  After our return, we realized that we could not make that trip every few months to follow-up.  After three months of many emails, phone calls, and teaming up with another Idic15 mom in Vancouver, Idic15 Canada was born.

This organization now has four actively working clinics across Canada, with incredible teams of specialties in every medically concerning areas of Idic15.  We have four of the top Canadian Scientific Minds on our Scientific Advisory Board, and, as of a few months ago, we have had World Idic15 Awareness Day proclaimed by the provincial Government.  The date is October 15, the day that Connor and I left for Boston.

We have been gaining in momentum as we approach the Awareness Day, with incredible support from The Rare Disease Foundation, Canadian Organization of Rare Diseases, and more.  We even had a video sent to us made by ICE PILOTS NWT Production Team to post on our Facebook Page.

We have been featured in the Canadian Medical Journal and the Pediatric Medical Journal, and will be featured along with one of Clinics, on Calgary’s Global TV.

So much awareness has already paid off, as we know of three children that have been diagnosed and treatment started as a direct result of the advocacy of Idic15 Canada.

We have teams in place to start the much needed clinical research.  Research that can help Connor and children like him now.

All of this started with the generosity of you, the people of Barriere, in sponsoring our Connor.  This is our “pay it forward” as our token of immense appreciation.

We are making and wearing ribbons, purple for epilepsy and green for growth and change on October 15. Again, we  thank you… Therese, Walt and Connor McKirdy.

To view the Awareness Day Initiative go to https://www.facebook.com/Idic15Canada

Therese McKirdy, CEO,

Clinics and International Chair



Just Posted

Residents line up outside the Vernon Recreation Complex for their COVID-19 vaccine Saturday, June 5. (Jennifer Smith - Morning Star)
No appointments necessary for first dose COVID-19 vaccine: Interior Health

People can just show up at clinics, register on the spot and get the shot

(TNRD Library)
Let the mystery of the Summer Reading Club begin

Are you ready to ‘Crack the Case’ at the Barriere Library?

(Metro Creative photo)
Gardeners of all ages invited to enter 2021 NT Fall Fair contests

The North Thompson Fall Fair Drive Thru scheduled for Saturday, Sept. 4,… Continue reading

Milsom Lodge was built in the East Barriere Valley when the Milsom brothers purchased two parcels of land in 1911, DL 2323 and DL2324. (Milsom’s photo)
The Milsom Lodge: The mansion, the ballroom, the history

“At the turn of the century, when so many families were leaving… Continue reading

Canadian Prime Minister Justin Trudeau participates in a plenary session at the G7 Summit in Carbis Bay, England on Friday June 11, 2021. THE CANADIAN PRESS/Adrian Wyld
Canada donating 13M surplus COVID-19 vaccine doses to poor countries

Trudeau says the government will pay for 87 million shots to be distributed to poor countries

Montreal Canadiens goaltender Carey Price (31) is scored on by Vegas Golden Knights defenseman Alec Martinez, not pictured, during the second period in Game 1 of an NHL hockey Stanley Cup semifinal playoff series Monday, June 14, 2021, in Las Vegas. (AP Photo/John Locher)
Habs fall 4-1 to Vegas Golden Knights in Game 1 of NHL semifinal series

Match was Montreal’s first game outside of Canada in 2021

Kelowna-Lake Country MLA Norm Letnick, assistant deputy speaker at the B.C. legislature, presides over committee discussions. The legislature is completing its delayed spring session this week, with most MLAs participating by video conference. (Hansard TV)
B.C.’s daily COVID-19 infections dip below 100 over weekend

Only 68 new cases recorded Monday, four additional deaths

The BC Ferries website went down for a short while Monday morning following a provincial announcement that recreational travel between health authorities can resume Tuesday. (Black Press Media file photo)
BC Ferries’ website crashes in wake of provincial reopening announcement

Website back up now, recreational travel between health regions to resume as of Tuesday

The Kamloops Indian Residential School is photographed using a drone in Kamloops, B.C., Monday, June, 14, 2021. The remains of 215 children were discovered buried near the former school earlier this month. THE CANADIAN PRESS/Jonathan Hayward
Communities grapple with what to do with former residential and day schools

Some tear them down as a tool to help healing, others repurpose them as tools for moving forward

FILE – Provincial health officer Dr. Bonnie Henry talks about B.C.’s plan to restart the province during a press conference at Legislature in Victoria, Tuesday, May 25, 2021. THE CANADIAN PRESS/Chad Hipolito
B.C. watching U.K.’s COVID struggles but don’t think province will see similar pitfalls

Studies show that one dose of vaccine is only 33 per cent effective in preventing B.1.617.2 spread

RCMP Const. Shelby Patton is shown in this undated handout photo. RCMP say that Patton was hit by an allegedly stolen truck that he had pulled over on Saturday morning in Wolseley, east of Regina. THE CANADIAN PRESS/HO, RCMP
Pair charged in Saskatchewan Mountie’s death make first court appearance

Const. Shelby Patton was hit by an allegedly stolen truck that he had pulled over Saturday morning

David and Collet Stephan leave for a break during an appeal hearing in Calgary on Thursday, March 9, 2017. THE CANADIAN PRESS/Todd Korol
Appeal Court rejects stay for Alberta couple facing third trial in son’s death

Pair accused in their earlier trials of not seeking medical attention for their son sooner

Highway notices like this come down effective June 14. Public health restrictions on non-essential travel and commercial operation have hit local businesses in every corner of B.C. (B.C. government)
Province-wide travel back on in B.C.’s COVID-19 restart plan

Gathering changes include up to 50 people for outdoor events

Most Read